Caring for someone with a tube
"As a carer, Jason having a tube has been a bonus. Before there was a lot of pressure on him to eat."
Your local care team will support you as the carer, as well as the person with MND/ALS. Good teamwork will help you both through all aspects of tube feeding – from deciding if it’s the right decision for you to having a feeding tube; through to having it fitted, using it to feed and looking after it.
Rose, Liz and Trevor share some of their thoughts on caring for their partners – both practical help they’ve received and also how they feel about being a carer.
Coronavirus/COVID-19: People with MND/ALS are at increased risk. Please see the MND Association guidance here for advice and contact your care team.