External Resources

A summary of research into the timing of fitting feeding tubes and possible benefits. Part of the research that myTube was developed from.

The MND Association’s key resource on tube feeding, with advice on alternatives if you say no.

A introduction to the physical changes that can happen to swallowing in MND.

An introduction to coping with changes to eating and drinking; plus recipes and tips to help adapt meals.

Information and tips on eating and drinking with MND, with a recipe collection. Complements the written guide.

Tips on keeping your mouth healthy and comfortable as your swallowing changes.

Support around intimacy and body image, covering feeding tubes among other topics. For people with and without partners.

Support and advice around intimacy, covering feeding tubes among other topics. For partners of people living with MND.

Covers different types of tube feeding, for people with any health condition. Co-produced by UK dietetic organisations PENG & PINNT.

Suggestions from PENG and PINNT about questions to ask your care team when deciding whether to have a tube.

The NHS Choices guide to swallowing problems (dysphagia) across a wide range of health conditions. Small section on tube feeding.

Guidance on decision making in the later stages of MND, including choices around nutrition and tube feeding in the later stages (whether or not a feeding tube has been fitted).

Guidance on planning your care as your condition worsens. This includes how you may want to manage eating and drinking, and tube feeding.